Hello my name is Rory Cardin. I am 34 years old. I have had kidney disease my whole life. Initially I had been diagnosed when I was born, my left kidney failed to develop properly due to cysts and ended up being reabsorbed into the body. My right kidney also developed some cysts but kept on keeping along and keeping me alive until 2020 when it finally succumbed to the damage the cysts had done and I needed to start dialysis.
But my disease does not define me. I enjoy drawing and painting and other forms of artistic expression. I love film and storytelling through reading novels and books. I work as a dispatcher for AAA Northeast and have had this job for almost ten years now. I have been able to maintain full time even with the illness but it has been difficult. I want to keep working, and I enjoy what I do.
I recently got to see my niece be born into the world and while I do not have children of my own seeing her grow in the past few months I’ve known her has been incredible and I want to see her grow further.
I try not to let the disease get in the way but it does have its impacts on my life, namely with the dialysis treatment. I cannot express how much different I feel thanks to the dialysis but being attached to a machine for 12 hours a day can be grueling.
I have had to miss some vacations and put off other trips due to the complexity of travel with my equipment.
I miss late nights around the kitchen table while family and friends play board games - now my nights are early so I can be on the machine. Scheduled and rigid. Gone is the spontaneity.
The basic freedom of not being attached to a machine. The energy increase I feel from dialysis would only improve, I would imagine, with a working, living kidney.
A transplant would mean the world to me and also to my family.
This all means I need your help. I need to get my message to as many people as will read it. I need my friends and family to share this. I need their friends and family to share this… hopefully the message can be seen far and wide enough to make it to the right person who can help me.
Together we can find a donor.
“It's like in the great stories, Mr. Frodo. The ones that really mattered. Full of darkness and danger they were. And sometimes you didn't want to know the end. Because how could the end be happy? How could the world go back to the way it was when so much bad had happened? But in the end, it’s only a passing thing, this shadow. Even darkness must pass. A new day will come. And when the sun shines it will shine out the clearer. Those were the stories that stayed with you. That meant something, even if you were too small to understand why. But I think, Mr. Frodo, I do understand. I know now. Folk in those stories had lots of chances of turning back, only they didn’t. They kept going, because they were holding on to something. That there is some good in this world, and it's worth fighting for.”
If you are considering being a living donor please use links below to contact Rory Cardin's Transplant Center. Begin by completing the donor questionnaire
There are currently 120,000 people waiting for a lifesaving organ transplant in the U.S. Of these, 100,000 await kidney transplants.
The median wait time for a kidney transplant is 3-5 years and can vary depending on health, compatibility, and where you live.
In 2014, 17,107 kidney transplants took place in the U.S. Of these, 11,570 came from deceased donors and 5,537 came from living donors.
Every 14 minutes someone is added to the kidney transplant waitlist.
A kidney from a living donor lasts longer and begins functioning more quickly than a kidney from a deceased donor.
In 1995, kidney donation became minimally invasive with a procedure called laparoscopic nephrectomy, which only requires four small incisions. Hospital stay is typically only 3 days after this operation.
Not blood type compatible with your recipient to be a living donor? Kidney Paired Donation (the “kidney swap” program) enables incompatible candidates with a living donor to receive a kidney from a compatible donor.
Last year, over 700 living donor kidney transplants occurred using Kidney Paired Donation.
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