Share your story.

Reach living donors.

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Your Donor is Within Reach

DONOR helps patients like you on the transplant waitlist tell their story about organ failure and their need for a transplant.

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Why Living Donation?

Quality of Life

Transplants can greatly improve a recipient's health and quality of life, allowing them to return to normal activities.

Increased Life Span

A kidney transplant dramatically increases the life span of a patient by about 10 years and improves their quality of life.

Shorter waiting time

Patients on the national transplant list face long wait times (sometimes several years). Patients who find a living donor do not have to wait.

Why Use DONOR?

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Patients are 6 times more likely to have a donor come forward

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Connect with others and build upon your support system

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Invite your friends and family to provide support

HOW IT WORKS

Request Invite

Sign up using the form below. Select your State and Transplant Center. If your center is currently participating in DONOR, your invitation request will automatically be sent to them. If not, we'll let you know, and you can ask your doctor about joining DONOR.

Tell Your Story

Telling your story is easy. You can either video record it, or write it out. We give you some prompts to guide you along the way, as well as sample stories so you can find inspiration. We also encourage adding photographs to your story to really help your story stand out.

Share

Once your story is finished, you can easily post it to Facebook, Twitter, or Messenger with a click of a button. You can also easily post it into an email, text message, or grab a link to it to put it anywhere else!

Update

We encourage occasionally updating your story, and then re-sharing to increase visibility. Keep your friends and family in the loop about what's happening on your journey to find a living donor. The more you update and share, the more people will see your story - including potential living donors!

Patient Stories

Today, living organ donation is a viable option for many transplant patients, yet the number of people waiting for a transplant far exceeds the number of donors. View some of the inspiring Patient stories and consider becoming a living organ donor.

Frequently Asked Questions

How will DONOR help me find a live donor?

DONOR will help you create a social media post that shares details of your organ failure and need for a live organ donor. Your post will contain contact information for your transplant center for readers to start the evaluation process and/or learn more about living donation. By sharing your story with your social media following, you will have a better chance of identifying a potential living organ donor. Patients who used our app in an early study were 6.6 times more likely to have a potential living donor come forward on their behalf.

What if I don’t feel comfortable sharing personal details of my life on Facebook or other social media sites?

Sharing your private health information can be scary and intimidating. DONOR was developed to help patients share their story with friends and family using the broad reach of social media. If you do not feel comfortable sharing your story with your loved ones, you absolutely do not have to.

However, we strongly encourage you to share your post. Donor is a resource that can help you find a living donor faster and more easily. This resource can be the key to helping you feel healthier and allowing you to get back to living a normal life.

By using DONOR, will I get moved up on the deceased donor transplant waitlist?

No, using DONOR does not move you up on the deceased donor transplant waitlist. Instead, the Donor App will help you find a potential living donor through your online social network. With a living donor, you can undergo living donor transplantation immediately, avoiding the deceased donor waiting time.

Is it OK to use DONOR if I am currently inactive on the deceased donor waitlist?

Each individual case is different, but most patients would benefit from a potential living donor. Talk to your transplant team to discuss your status on the waitlist.

Is it OK to use DONOR if I’ve had a previous organ transplant and am currently re-listed?

Each individual case is different, but most patients would benefit from a potential living donor. Talk to your transplant team to discuss your concerns.

Is it OK to use DONOR if I am listed for multiple organs (i.e. kidney and liver)?

No. Unfortunately, patients that are listed for multiple organs are currently not eligible candidates for living donor transplantation. Consequently, DONOR would not apply to patients in need of multiple organs.

Is it OK to use DONOR if I already have a potential living organ donor?

Absolutely! There is nothing wrong with having more than one potential living organ donor. After identification of a person interested in living donation, your transplant hospital will evaluate each individual thoroughly to ensure that they are eligible to donate and that donation would be safe for them and for you as the recipient.

Sometimes, interested donors may not able to donate for a lot of different reasons, in which case having more than one potential living organ donor may be in your best interest.

How does my transplant hospital use my story and details from DONOR?

Your transplant hospital will collect the information that you have entered into DONOR and use it to better understand how to improve the experience of the site. Your transplant team will try to make sure that everyone who needs to see your information keeps it confidential - but we cannot guarantee that your information will not be redisclosed. Your private health information is kept protected on the DONOR secure server.

What if a potential living organ donor comes forward on my behalf but they live out-of-state or live far away?

That is OK - they can still be a living organ donor! Have them contact your transplant hospital and express their interest in donating an organ. The transplant team will be able to answer all of your specific questions.

What if a potential living organ donor comes forward on my behalf but doesn’t match my blood type?

That is OK - they can still be a living organ donor and may still help you get a living donor transplant! Paired donation exchange programs exist to help more patients get transplanted. Have the interested donor contact your transplant hospital and express their interest in donating an organ through an exchange program. The transplant team will be able to answer any questions and start the evaluation process.

Why should I pursue live donor transplantation?

Live donor organ transplantation is the best treatment option for patients on the organ transplant waitlist. Transplant candidates generally have better results when they received organs from living donors as compared to organs from deceased donors. Often, transplant organs from living donors last longer than those from deceased donors.

Give hope to others

Do you know someone else on the transplant waitlist? Share Donor with them and give them the opportunity to share their story.