Hello, my name is Amaya Johnson I have just tuned 21. I have was diagnosed with FSGS (a rare disease that affects the filters in your kidneys) at 5 years old. It didn’t start getting worse till I was freshman (9th grade) in high school that I was in need of one the first time. I was on Peritoneal dialysis from 1 to 2 years and that’s when I got my first kidney. I had to miss the remaining year of 9th grade.
My mom first found out when I was 5 years old, she knew something was wrong and took me to the hospital where we live but they misdiagnosed me. She didn’t accept that and took another opinion where they found out I had FSGS, I have been diagnosed for about 17 years. Doing dialysis now in 21 years old I go Tuesdays, Thursdays, and Saturdays usually after dialysis I go home to take a nap because it is so draining on my body. It affected my life because I really couldn’t grow up being a kid, I couldn’t stay out and stay with friends. I just overall miss my chance to be a kid and finish my 9th with friends.
It would mean a lot to me, I could start traveling again to see my baby sister and or with friends and family without having to think about dialysis in the back of my mind. I could start working again to meet new people and or to make friends.
Everyone is welcome to share my story on whatever app that you want, the more the better. I am just glad and happy that people are willing to help a stranger that they haven’t meet.
If you are considering being a living donor please use links below to contact Amaya Johnson's Transplant Center. Begin by completing the donor questionnaire
UNC Medical Center, 101 Manning Drive, Chapel Hill, NC, 27514
Did you know?
Medical expenses for living organ donors are 100% covered, and inquires from potential donors are 100% confidential! Contact the Transplant Center to learn more about living donation.More Donor FAQs
There are currently 120,000 people waiting for a lifesaving organ transplant in the U.S. Of these, 100,000 await kidney transplants.
The median wait time for a kidney transplant is 3-5 years and can vary depending on health, compatibility, and where you live.
In 2014, 17,107 kidney transplants took place in the U.S. Of these, 11,570 came from deceased donors and 5,537 came from living donors.
Every 14 minutes someone is added to the kidney transplant waitlist.
A kidney from a living donor lasts longer and begins functioning more quickly than a kidney from a deceased donor.
In 1995, kidney donation became minimally invasive with a procedure called laparoscopic nephrectomy, which only requires four small incisions. Hospital stay is typically only 3 days after this operation.
Not blood type compatible with your recipient to be a living donor? Kidney Paired Donation (the “kidney swap” program) enables incompatible candidates with a living donor to receive a kidney from a compatible donor.
Last year, over 700 living donor kidney transplants occurred using Kidney Paired Donation.
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