Hello, my name is Constantina Arroyo, I am 28 years old and I have Stage 5 Kidney Disease. When I was 3 months old I was diagnosed with Tuberous Sclerosis. I have had to annually get CT Scans, Ultrasounds’, MRIs’ and have my blood checked. This to make sure that the medications I was on did not damage my body and that it was doing what it was supposed to do. Tuberous Sclerosis can affect many parts of the body. Like my Kidneys, Ovaries, Heart, Brain, etc. Fortunately my heart was not affected but the others were and I have had to take medication to control my seizures and high blood pressure. Due to this disease I now have Stage 5 Kidney Disease and need a transplant of the kidneys.
It affects my life to a great degree; I am struggling with depression and anxiety because of what I am going through. I have been prescribed antidepressants by my therapist to help stabilize me so that I don’t go to extremes and I am always tired. I have little to no energy and I struggle to get up in the morning. I struggle to have an appetite and am losing weight unintentionally. I have to get help for anything that requires bending and can’t do more than minor tasks like wiping counters. I try to go for walks but it can be a struggle due to my growing weakness. It takes a lot out of my family members who have to put up with my imbalanced emotions from where I either feel nothing at all or I feel too much, I get into altercations with others over trivial things and have lost interest in doing things I like to do.
A transplant would mean so much to me because it would give me a second chance at life and give me more time with my loved ones. I could build up my career and have a future to look forward to. I would get to see my sister and brother grow and form their own families and be more involved in family events I can’t do now.
I am at 10% functionality with my kidneys and am very close to going on dialysis. My hope is to find a living donor before then and it would mean so much to me if you could share my story with your friends and family and any forms of media you have access to. For those willing to, call the number below and help me get my life back.
Learn more about living organ donation for: Constantina Arroyo
Center for living Donors
Yale New Haven Transplantation Center
If you are considering being a living donor please use links below to contact Constantina Arroyo's Transplant Center. Begin by completing the donor questionnaire
There are currently 120,000 people waiting for a lifesaving organ transplant in the U.S. Of these, 100,000 await kidney transplants.
The median wait time for a kidney transplant is 3-5 years and can vary depending on health, compatibility, and where you live.
In 2014, 17,107 kidney transplants took place in the U.S. Of these, 11,570 came from deceased donors and 5,537 came from living donors.
Every 14 minutes someone is added to the kidney transplant waitlist.
A kidney from a living donor lasts longer and begins functioning more quickly than a kidney from a deceased donor.
In 1995, kidney donation became minimally invasive with a procedure called laparoscopic nephrectomy, which only requires four small incisions. Hospital stay is typically only 3 days after this operation.
Not blood type compatible with your recipient to be a living donor? Kidney Paired Donation (the “kidney swap” program) enables incompatible candidates with a living donor to receive a kidney from a compatible donor.
Last year, over 700 living donor kidney transplants occurred using Kidney Paired Donation.
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